One thing that is never easy for me to do is talk about myself. Most of the time people seek me out to vent, ask for advice or simply tell me about their days. But rarely do I try to seek others out to discuss my frustrations. I thought blogging would help with that and yet I became a ghost, abandoning my current blog. By no means was that intentional, however discussing cancer is never a comfortable state of being.
So what has happened in this short lapse of time?
At the start of August I received my first round of radiation. I say first because I do not know yet if it will be my last, one and only, or if I will require more. Let me start by saying getting radiation sucks ass. Yup just like that. Why? Because this procedure requires so much of you, that I didn’t know at the time. Nor did the doctors say “hey by the way this is what to expect, the real world version”, you know the realistic version of outcomes.
Here is the basics for anyone getting ready to have radiation iodine done. First, the obvious, you have to go into the hospital and swallow a pill (this part is the easiest). Prior to that happening (about 3 weeks to a month depending on dose) you must get off all your medications and start a very strict diet about 2 weeks prior to. So not only do you no longer get to take any of your thyroid meds (the ones that make you feel good). But you now get to go on a diet that isn’t very nutritionally sound, hence leaving you feeling even more drained.
Finally, dooms day comes, you go in to get your pill. But wait…afterwards, you must remain isolated in your home for a set period of time. I am a mother and wife, does this sound even remotely easy to have happen? No of course not, this requires planning, lots of planning. For example, where will my family stay? What should I pack for them while they are gone? I can’t really go anywhere, so what foods will I need to purchase ahead of time? How will I react to the radiation? Etc etc etc… surprisingly this takes a fair amount of pre-planning for anyone with a family.
So, you plan, make arrangements, pick up a whole bunch of stuff for yourself and THEN dooms day comes. Word of advice, I suggest buying disposable items they don’t suggest which makes no sense, like a tooth brush. I must eat on disposable plates, but there’s no concern about my tooth brush? Also my doctor suggested lemon drops as this helps to clear the salivary glands that can be affected by radiation (oh the joy I will have describing that one).
So now you may be wondering what to expected during radiation and post? Well don’t expect anyone to give you much advice beyond the little pamphlet you might receive. Well that was my experience… and a frustrating one at that..